

Communicating with a loved one with dementia
Learning that someone has dementia can be difficult. Feelings of uncertainty are natural and you may need time to accept the diagnosis. Being proactive to understand the disease is important to care for and communicate with your loved one.
Dementia describes the symptoms someone experiences from diseases that result from abnormal changes in the brain. These include memory loss, reasoning, language, problem-solving and other cognitive abilities that hinder daily activities and independence.
Types of dementia
Alzheimer's disease is the most common form of dementia. Other types include frontotemporal, Huntington’s, Lewy Body and vascular. Some people also experience simultaneous forms, called mixed dementia.
Of the over 7 million Americans living with Alzheimer’s, an estimated 200,000 under 65 have younger-onset Alzheimer’s disease. Although age is known to be a cause, a common misconception is that Alzheimer’s is a natural part of aging. The National Institute on Aging says that many people in their 90s live without any dementia symptoms.
Although there isn’t a specific test, doctors diagnose the disease through exams, brain scans, blood tests and reviewing medical history.
Communication changes
Interacting with a loved one is challenging as the disease progressively affects their communication. The Alzheimer’s Association outlines communication challenges to expect, including:
Repeating familiar words
Finding the best words
Difficulty arranging words
Losing train of thought easily
Speaking less frequently
With symptoms impacting a person’s behavior, feelings and relationships, this adds emotional challenges for families. Sensory concerns may make conversations difficult. Set reminders to stay updated with medical specialists as updated glasses or needed hearing aids can help their communication.
Family Caregiver Alliance outlines strategies to help communication throughout stages of the disease.
Nonverbal cues
Maintaining a positive mood, voice, expressions and posture can help your loved one relax. Concentrating on nonverbals and understanding their feelings may be more valuable than words. As the disease advances, they might better understand gestures like smiling and pointing.
Offering options
Help eliminate decision frustration by offering choices. Instead of asking "What would you like to drink,” you could say, “Would you like coffee or tea for breakfast?”
Keeping focus
Be a good listener. Conversations should be simple, covering one subject at a time. Provide eye contact and eliminate distractions such as the TV or other conversations.
Patience is important
Reminiscing about a memory can sustain conversations. Offer distractions if your loved one asks the same question or tells a story repeatedly. Step aside to avoid your loved one becoming angry when disagreement occurs.
Initial greetings
While it may not be necessary until later stages, say your name and their name upon initial greetings. “Hi, Grandma. It’s Maggie.” You may need to speak slower and more clearly for them to understand.
Although you might not know the right words to say to your loved one as the disease advances, remember that your support and presence are what matters. Some of the most important conversations you can have are after the initial diagnosis. With opportunities to discuss the future, the Alzheimer’s Assocation recommends talking about legal, monetary and long-term care planning. Together, you can decide how or when to pursue treatments and support groups.
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Genesis HealthCare System’s Health and Wellness content conveniently provides accurate and helpful information. Your health history and current health may impact suggestions provided through our Health and Wellness content. Although we hope this information is helpful, it is not a substitute for your doctor's medical advice. Before making any significant changes, please consult your doctor.