Opitz Syndrome

Self Help Clearinghouse

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Opitz-G/BBB Family Network

International. Founded 1994. Support, encouragement, education and sharing of successes and ideas for families affected by Opitz-G/BBB syndrome. Maintains database of members, literature, information, e-group, phone support and newsletter. Referrals to other families. Family conferences.
Write:
Opitz-G/BBB Family Network
P.O. Box 515
Grand Lake, CO 80447
Voice: 970-627-8935
Fax: 970-627-8818
Website: http://www.geneticalliance.org/organization/opitz-gbbb-family-network
E-mail: opitznet@mac.com
Verified: 4/5/2012

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