Reflex Sympathetic Dystrophy Syndrome

National Organization for Rare Disorders, Inc.

Important
It is possible that the main title of the report Reflex Sympathetic Dystrophy Syndrome is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • Algodystrophy
  • Algoneurodystrophy
  • Causalgia Syndrome (Major)
  • Reflex Neurovascular Dystrophy
  • RSDS
  • Sudeck's Atrophy
  • Complex Regional Pain Syndrome

Disorder Subdivisions

  • None

General Discussion

Reflex sympathetic dystrophy syndrome (RSDS), also known as complex regional pain syndrome, is a rare disorder of the sympathetic nervous system that is characterized by chronic, severe pain. The sympathetic nervous system is that part of the autonomic nervous system that regulates involuntary functions of the body such as increasing heart rate, constricting blood vessels, and increasing blood pressure. Excessive or abnormal responses of portions of the sympathetic nervous system are thought to be responsible for the pain associated with reflex sympathetic dystrophy syndrome.

The symptoms of reflex sympathetic dystrophy syndrome typically begin with burning pain, especially in an arm, finger(s), palm of the hand(s), and/or shoulder(s). In some individuals, RSDS may occur in one or both legs or it may be localized to one knee or hip. Frequently, RSDS may be misdiagnosed as a painful nerve injury. The skin over the affected area(s) may become swollen (edema) and inflamed. Affected skin may be extremely sensitive to touch and to hot or cold temperatures (cutaneous hypersensitivity). The affected limb(s) may perspire excessively and be warm to the touch (vasomotor instability). The exact cause of RSDS is not fully understood, although it may be associated with injury to the nerves, trauma, surgery, atherosclerotic cardiovascular disease, infection, or radiation therapy.

Resources

Reflex Sympathetic Dystrophy Syndrome Association of America
PO Box 502
Milford, CT 06460
Tel: (203)877-3790
Fax: (203)882-8362
Tel: (877)662-7737
Email: info@rsds.org
Internet: http://www.rsds.org

American Chronic Pain Association
P.O. Box 850
Rocklin, CA 95677
USA
Tel: (916)632-0922
Fax: (916)652-8190
Tel: (800)533-3231
Email: ACPA@theacpa.org
Internet: http://www.theacpa.org

Arthritis Foundation
1330 West Peachtree Street, Suite 100
Atlanta, GA 30309
USA
Tel: (404)872-7100
Tel: (800)283-7800
Email: arthritisfoundation@arthritis.org
Internet: http://www.arthritis.org

NIH/National Institute of Neurological Disorders and Stroke
P.O. Box 5801
Bethesda, MD 20824
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
TDD: (301)468-5981
Internet: http://www.ninds.nih.gov/

American Pain Society
4700 West Lake Avenue
Glenview, IL 60025
Tel: (847)375-4715
Fax: (866)574-2654
Email: info@ampainsoc.org
Internet: http://www.ampainsoc.org

Pain.com
c/o Dannemiller, Inc.
5711 Northwest Parkway
San Antonio, TX 78246
Tel: (210)641-8311
Fax: (210)641-8329
Email: editor@pain.com
Internet: http://www.pain.com

American RSDHope
P.O. Box 875
Harrison, ME 04040-0875
USA
Tel: (207)583-4589
Fax: (207)583-4978
Email: rsdhope@roadrunner.com
Internet: http://www.rsdhope.org

International Association for the Study of Pain
IASP Secretariat
1510 H Street NW
Suite 600
Washington, DC 20005-1020
Tel: (202)524-5300
Fax: (202)524-5301
Email: IASPdesk@iasp-pain.org
Internet: http://www.iasp-pain.org

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/

P.A.R.C. Promoting Awareness of RSD/CRPS in Canada
PO Box 21026
St. Catharines
Ontario, L2M 7X2
Canada
Tel: 9059340261
Email: carlayoung74@hotmail.com
Internet: http://www.rsdcanada.org/parc/english/index.html

Irish Chronic Pain Association
Coleraine House, Coleraine St.
Dublin, 7
Ireland
Tel: 35318047567
Fax: 35318047567
Email: info@chronicpain.ie
Internet: http://www.chronicpain.ie

Multiply, Inc.
6001 Park of Commerce Blvd. Suite 300
Boca Raton, FL 33487
USA
Internet: http://wristinstability.multiply.com/

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated:  8/17/2007
Copyright  1986, 1987, 1994, 1995, 1996, 1997, 1998, 1999, 2000, 2004, 2007 National Organization for Rare Disorders, Inc.

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